Mommy's Angel In Heaven

This site is dedicated to our daughter who left us to go to heaven on July 16, 2008.

Old and New

Posted by Mommy's Angel In Heaven on February 20, 2012

It’s interesting to me to have a child, my niece, as me a question about a conversation she over heard me having with her mom on the phone talking about how I died the day Mariana died and a new Kristena was born. Athena asked me this morning, “Auntie Kris, last night when you were talking to my mommy you talked about an “Old Kristena” and a “New Kristena,” what was the “old Kristena” like?”

I wasn’t quite sure how to answer this. How do you explain to an 8 year old what you used to be like? I told her I didn’t know how to do this. I just know I am different now than I used to be. In ways, there are things that have turned out better, if that makes sense. Well, maybe “better” is quite the right word. But somehow I see things in a better light. I appreciate things more. I don’t take things for granted like I used to.

At the same time I am also sadder while being happy at the same time. The part that makes me sad is I will always be sad that Mari is gone. I will always miss her and wish she were still here with us. Life will never be the same as it was when she was here. I was a stay at home mom. She was my full time job. She had severe autism. Now my life is where I have a full time job. I am a mom again to my niece and nephew with possibly taking my younger niece and nephew who are 1 and 2 years old.

My life is nothing like it was from 3 ½ years ago but then this is how God intended it. I know I continue to grow on a daily basis. I learn to write better. I learn to see the world differently all the time. It is good to grow and share my life with the man I love. I feel fortunate that we have been officially married as of February 18, just two days ago.

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Having Kids

Posted by Mommy's Angel In Heaven on January 29, 2012

This weekend has been a nice relaxing weekend. I have basically sat here catching up on one of my favorite shows. The only thing that stinks is that Keith is not here. He is on a business trip this week. I miss him when he is gone. The kids haven’t been exactly happy has they have both been grounded all weekend. I think that it really has impacted them. Trevin’s was mostly for lying (again) and Athena’s was mostly for being disrespectful and rude to an adult but going up to the other’s team’s coach and telling him that his team is nothing but a bunch of cheater. She certainly is not scared to speak her mind. Someone at work said she is very brazen. I don’t mind her not being afraid to speak her mind. However, she really has to learn when it’s ok to do it and when not to. And certainly an 8 year old little girl has no right to go up and tell an adult this. I think both have been learning lessons.

I will say both kids have really come along since they have been with us. Some things have been more of a struggle than other but I think that is to be expected. They are two of sweet kids I know. I hear such good things from others who are around them. I just think of where they came from and it is good to know that my husband and I are doing some good in their little lives. It feels good to know that they are happy and want to live with us. The kids are so happy now that they want to live with us for the rest of their lives and just have visit with their mom and dad. To me that is partly sad only because for kids to feel this way about their own parents is sad. However, at the same time it makes me happy to know that they are truly happy here.

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Life’s moments and other things…

Posted by Mommy's Angel In Heaven on January 28, 2012

It seems that I don’t write like I used to. I can honestly say that I am really starting to miss it.

The kids have been with us for almost 7 months now and we are finally into a good routine. There are some thing we are still working the kinks out with but for the most part it is really going good. So much so I have started thinking about getting back to the book. I hate the fact I had to put it on hold but I guess life has its own agenda and it did not include what I wanted (darn it anyway).

I was sitting at work yesterday thinking about Mari’s book and I think I finally came up with the perfect title. One that is very fitting and will still allow me to use her eyes in the cover.

“Seeing the Beauty Within”

For me this has so many meanings. Seeing the beauty within autism. Seeing the beauty within tragedy. See the beauty within life. Seeing the beauty within Mari. Seeing the beauty within myself. Simply put seeing the beauty no matter the circumstances as this is what ultimately gets you through at the end of the day. I feel like this title is perfect.

I sit here tonight lying in my bed with my netbook on my lap. My little jack russel lying beside me sleeping and down for the night. The kids each in their room out cold until tomorrow morning. It is peaceful and just nice to be home.

Next month and February 18 Keith and I will be married for 18 years. It is hard to believe that it has been 18 years already. Almost half my life has been married to the best man in my life. I feel so blessed to know that God put him in my life all those years ago and we are where we are today. I could not imagine that everything we have been through these past 18 years having done it with anyone else.

I wrote that above last night before going to bed. It feels good to write again.

Today I basically spent the day watching season 4 of “Being Erica”. I had to watch it on YouTube as it seems it is not available to watch anywhere else. It was good though as I have seen the first three seasons and wanted to know how everything happens in this, from what I understand, last season. It would feel like a cliffhanger if I couldn’t have watched this season.

I look at shows like Being Erica and think “what if that could really happen?” I mean wouldn’t it be nice to be able to have regrets and go back in time to correct those regrets. I know I have many regrets but then they are what they are. We can’t go back and change anything. What’s done is done. I look at what happened to Mari and have so many just related to what happened to her and what happened at the very end.

The thing to remember with regrets is to not dwell on them. If you do they can ultimately consume your life. I think regrets are just a part of life. Everyone has them. It is how you handle them that counts the most.

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Changes in life…

Posted by Mommy's Angel In Heaven on November 15, 2011

First let me start off by saying long time no talk.  I am sorry I have been gone for a while.  A lot has happened in my life since the last time I posted anything on Mari’s website.  I look back at the date of June 23 and it seems like a lifetime ago.

On July 15 Keith and I headed to Chicago to be with Mari (so to speak) on her 3 year mark of being gone.  July 16 was officially 3 years and we spent some time at her grave.  It is hard to believe that 3 years have already come and gone but they have.  Sometimes it feels like just yesterday that we were in the hospital watching her slip away in front of us.

Then we had our 15 year old niece Crysta and our 6 year old nephew Trevin (they are cousins) fly out for a visit.  Crysta comes out every summer and this would be the first time Trevin not only came to visit with us but to even fly on a plane.  What ended up starting out as a visit with our nephew turned into him coming to permanently live with us, for at minimum, the school year.  And to top it all off we also flew out our 7 year old niece Athena to come and live with us as well.  Crysta flew out on my birthday and Athena came to live.

Keith and I went from being just the two of us and having the freedom to do what we wanted or needed to do to now having two young children to take care of.  It is a shock to the system so to speak.  To say it has been interesting I don’t think can quite describe the past 4 months.

I guess the question you might be asking is do you think it was good for us.  I can say without a shadow of doubt that absolutely yes.  Keith and I needed something like this in our lives.  It forces the issue of not just thinking about Mari.  We now have two children to take care of.  I think of them as our own kids.  It treat them as if they are our own kids.

Don’t get me wrong, it has been a very hard adjustment in that Trevin has pretty severe ADHD.  It is really hard for him to concentrate and sit still.  He also has speech issues.  Neither of these things have ever been dealt with by my brother or the mom.  But the abuse that both of these two little ones have had to face in their short lifetime is completely inexcusable. 

We have had both Trevin and Athena tested for ADD/ADHD and learning disabilities.  What was great to find out is just how smart these two are.   Trevin’s IQ is good at about 105 (I think) and Athena’s is 127.  Both of them have such high potential.  I can see such a bright future for them. 

However, the abuse is going to be a hard road for the two of them.  If we just raise our voice to loud they become scared to death that we are going to hit them (and when I say hit I mean beat the crap out of them).  Scared doesn’t even quite describe how scared these kids are.  You can see in their faces they are literally petrified of being hit.  Your heart just melts when you see it as you just feel for them.

Trevin has issues with lying about everything, especially in the beginning.  He is slowly but surely getting better but I still know it is a long road ahead.  Athena always tries to manipulate the situation to her advantage.

Even through all of this, I know Keith and I are really helping these two to be able to have a better life as they grow up.  They have stability for the first time in their lives.  Trevin is now in a basketball league and Athena is cheerleader for his team.  They are both excited to be doing this.

They have clothes that actually fit them and are now appropriate.  Trevin actually has underwear to wear now.

I think the kids are happy and Trevin has even told me he wants to live with us permanently.  I think it is really sweet. 

It seems like when Keith and I are finally doing good in our marriage something else always seems to creep in to put a strain on it.  This has been a rough adjustment.  I mean we have literally been thrown into parenthood.  Being Mari’s mom and dad was completely different than being a parent to your typical, average children.  Mari had severe autism.  It just doesn’t even compare one to the other.  So as you can probably imagine we have different parenting techniques that we have had to try to implement quickly.  I mean, we didn’t even know what would be the right time to put the kids to bed for the night (we decided on 8pm).

Through it all it has been good for Keith and I.  I know God has a plan for us and it will be interesting to see how everything continues to unfold.

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Life’s Moments…

Posted by Mommy's Angel In Heaven on June 23, 2011

I am here at work today just having a normal day.  I had a book by Angie Smith called I Will Carry You that I let someone borrow.  It is such a story of encouragement to me while at the same time it made me ball like a baby.  I could so relate to her story.  It truly touched my life.  I am ever grateful to have been introduced to this story at my women’s retreat this past March.

I let a coworker borrow the book to read.  For her it was just too sad and so she had laid it on my desk this morning giving it back.  I decided to ask this other woman I work with if she would be interested in reading a book a very inspiration but it is a tear jerker.  Her eyes lit up as she said, “Yes.”  I then started talking about the book and telling her how I have never highlighted in any book before other than when I was in college.  But there was so much compelling stuff that either I understood what she went through or she had some great words of wisdom.

My friend then said that God only allows special people to have a child and then one day when it is time for that child to come back home that he knows they will be ok.  I told her, “I am not special.”  And then the waterworks just start to flow out of me.  I couldn’t even make it to the bathroom in time before the tears were flowing out of my eyes.

You would think that after almost three years I would still not have this kind of reaction over losing by precious baby girl, my angel in heaven.  This couldn’t be further from the case.  I miss her so much.  My heart still aches to know she is not here with me on this earth.  I would give anything to have her back but I know that will never happen in this life time.  I do know that I will one day get to see her again in heaven but it just feels like that is so far off into the distance.  My heart has a hole in it that will never be filled again as she held that spot.  However, I know that I will be ok.

I know that God has very special plans for me.  I know he has shown me in His own special way that the way I write has the ability to touch other people’s lives.  It is amazing that through such a tragedy as losing my daughter that something as beautiful as my writing can be (or at least that is what other tells me) so touching to other people’s lives.  It makes me feel special.  I know that God has a plan for me.  I know that whatever it is it will be something that uplifts Him and helps others to know that someone else out there truly understands what it is like to go through the incredibly hard times in our lives. 

Nothing can be worse than losing a child, at least for me.  It is the hardest thing I have ever had to deal with.  However, I know there still is unknown strength within me still yet to be found.  When I hear others say how much they admire me for how strong of a person I am I always tell them I am not strong.  But if others see me that way they see me that way.

I thank God for this gift of writing and the ability to share it with others.

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Just sitting here thinking…

Posted by Mommy's Angel In Heaven on June 16, 2011

I was sitting here thinking on my way home from work today how I don’t write as I used to.  Here recently it has all been about either writing Mari’s book or now attempting my first hand at writing something fiction.  However, I have been really thinking about Mari here recently as her three year mark approaches.  It is hard to believe that it has been almost three years.  It still doesn’t seem possible.

Mari will always continue to live on in my heart.  I hope through her story she will also continue to live on through the hearts of those who read it.

I feel like sometimes I have come to an impasse in life.  Where do you go from here?  What road she you take.  Only God truly knows the outcome but it is interesting to see as life is continuing on how your life is headed.

I was talking with this women tonight in a chat room on a forum for Christian writers.  I like to go in there at night and talk to the people on the forum as they are all fellow writers like myself (puts a smile on my face to even call myself that).  They are Christians and we are just there getting to know each other and being friends.  It is nice.  It is something I look forward to almost every night.  It’s amazing how God showed me the road to it.  God just works in such mysterious ways.  It is amazing.

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Moving forward with the book

Posted by Mommy's Angel In Heaven on June 9, 2011

Hello everyone. I want to keep everyone up to date with the book progress. I have joine a few writing forum’s to help me become a better writer. In the process I have been able to post some of my writing in order to get feedback from strangers as to what they think of the book so far. What I have come to realize is that I need to rewrite much of the book so that I can get Mari’s story across the way it needs to. I want others, those who never have had a chance to meet and get to know our precious angel in heaven to be able to do it through the book.

The dilema I am in now is how do I move forward.  I have a new prologue I would like to share with you now.  I did have this before but I think it is a good way to draw the reader in to want to find out more about this little girl who has her mommy so upset to possibly losing her.  I also have a poem starting each chapter that has something to do with the chapter that is geting ready to be read.  It directly correlates to it.

Prologue

It’s 12:30 in the afternoon on a scorching Chicago summer day.   The room we are about to enter is stark white reminding me that I’m in a hospital.  The nurses are asked to clear out of their lounge as this will be the location where lives are changed.

My husband Keith and I are the first to now enter the somber room.  We head to the other side of a stately square maple table that seems to encompass the rather small space.  Over the next couple of minutes it seems that every resident and fellow working on the PICU floor that day has come to watch the upcoming display.  By the time everyone has come in, there is standing room only.  I think, “Why do ALL these people need to be in here?  Do they think they are at the movies getting ready to watch a show?  I’m surprised they don’t have their popcorn!”

Finally, the PICU and Pediatric Neurologist Attendings arrive.  Two seats have been saved at the table to the left of me.  At this point I am more nervous than I have ever been before in my life.  My stomach is doing somersaults as we await the verdict about to be handed down.  Deep inside my already wounded heart it knows what we’re about to be told with my brain waging war saying, “There is hope.  Don’t you dare give up now.  She is still alive.”

The neurologist starts to speak and it’s like the world starts to slow down to a snail’s pace as I try to comprehend what is being said.  Suddenly through the (haze)fog I hear, “The person that you know as your daughter is no longer with us.  She will never be the same again.”  Before the doctor can say all the words, my world instantly crumbles down all around me as my worst nightmare has just come true.  I sit there sobbing with an avalanche of tears I never knew could exist in just one person.  In what seems like the blink of an eye, my life has now changed into an unexpected realm of grief and thrust into an unimaginable reality.  My brain is simply unable to wrap itself around all of this.

————————————————-

From here it is a matter of which way to go that will draw in the reader.  I have three options I am trying to choose from.  Option 1 would start something like this:

Chapter 1 – In the Beginning…

Impossible Possibilities

It has not come
am I really that late?
It’s been 29 days
according to the date.

They said it can’t happen,
it’s not possible you see;
But God has other plans
that happen to be just for me.

I go see the doctor
just to make sure
that I might be expecting
a little him or a her. 

For the doctor says
I just need to wait to see
nine months from now
you will be happy as can be

The wait may seem long
but time will fly by
because it will happen
in just the blink of an eye.

When your little one you’ve wait for
finally comes on out
your family will be complete
there will be no more doubt.

The first time I saw Keith we were both in the Army stationed at Fort Hood, Texas.  My battalion had just moved to these new barracks about two weeks prior.  We had over sixty percent female soldiers compared to Keith’s being almost one-hundred percent males with the exception of one.  I can only imagine being an eighteen to twenty-something guy and finding the plethora of new “friends” to be made.

He and several of his buddies came by my barracks to visit two of my next door neighbors.  I was standing out on my balcony in front of my door when one of the guys stated talking to me.  Then Keith came over.  He looked like he might have been sixteen or seventeen years old.  I thought one of my neighbors was his sister.

I asked him, “So are you here visiting your sister?”

“No.”

“So, who are you with?”

He points to the guys and says, “I’m with them.”

(with the chapter continuing on from here to where Keith and I get married, find out about our infertility issues, we get pregnant and have Mari.)

Option 2

Chapter 1 – And So It Begins…

Moments

Who could have known
this moment would have arrived;
one we were told was impossible
and would never come

The moment of breath,
the moment of life;
even at that
a rope stops it cold.

Only the magic
of an angel’s hands;
who works his magic
to bring us the moment
      we’ve waited for.

At last the air escapes
into the vastness around;
it shows us the promise of
days, months, and years to come.

Who could have known
that all at once love envelops
the one waiting in the clouds
other than the Everlasting.

The amazing power of love
holds us to this moment;
as the future is promising
yet bleak at the same time.

I look back on Mari’s life and the drama of her life started the very moment she was born. She was not breathing due to the cord being wrapped around her neck.  Looking back on my pregnancy and all the complications I endured, I guess her delivery had to follow suit.  Two days after I found out I was pregnant, Keith and I headed out to Florida on our very first vacation as a couple.  While there, I started to have stomach issues.  Once we got back home it only got worse.  I will never understood why they called it “Morning Sickness” as it was never just in the morning.  It was also afternoon, evening and even at bedtime.  Then it would just start all over again the next day.  Personally, I liked to call it “All Day Sickness” as it made more sense.  The doctor ultimately put me on bed rest and I lost over 15 pounds.  In the end he had to give me an anti-nausea medication to get it under control.

Shortly after I had that under control and was back to work I started to have swelling around my ankles as well as my blood pressure and the protein levels within my body increasing.  These were the first signs of Toxemia.  It is also known as preeclampsia or eclampsia depending on the stage you’re in.  As it continued to get worse, my doctor would only allow me to work half days.  After five weeks of that, the toxemia had become so bad I was put on complete bed rest.  To top it all off, I was really starting to feel completely miserable.

(This part would be rewritten like I have in option 1 to show more of the story than to just tell it.  From here she is already born and then I get into her life with a couple of flashbacks as to how Keith and I met, got married, inferitily issues and the pregnancy)

Option 3

I start from where Mari’s gets sick that first day and then do many flashback throughout her life, how Keith and I met and got married, the pregnancy.

I am curious to know what you guys think.  When you think about this please pretend you do not know me or Mari for a moment.  If this was a book you were to pick up in the store to see if you would be interested which is the better way that you would be interested in buy the book to read it.  I hope I am making sense.  Please reply to this post with you responses.  I am really looking forward to hearing what you guys have to say.

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Updated the first couple of chapters

Posted by Mommy's Angel In Heaven on May 28, 2011

Hello Everyone,

I have taken some of the feedback given on the first two chapters and have revised what I had. I look forward to hearing more feedback. Thank you.

Click Here to read the preview

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Please let me know which book cover you like best

Posted by Mommy's Angel In Heaven on May 27, 2011

Hello everyone. I have created several different covers that I need to get everyone opinion on. I have the one directly below this post as the first one. I have several more in here. If you like the one in the post below please reply to that tread by saying you like that one best. However, if you like on of the ones I am going to post in here please say the letter of the one you like best. I truly appreciate all your help on this.

As I know the words will be hard to read on the graphics, here is what it says:

The Vision of Love: A journey through one little girl’s life with autism, family, and what it means to show unconditional love

Backcover:
The Vision of Love will take you on a journey through one little girl’s life from the time she was born through the struggles she will face and how they affected the people around her. Take this journey with her as she opens your eyes to a world that has touched so many.

Just remember, it is through The Vision of Love that you may have a new look on life and those around you.

Cover A:

Cover B:

Cover C:

Cover D:

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New Possible Book Cover

Posted by Mommy's Angel In Heaven on May 24, 2011

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